Saturday, March 19, 2011

A recap and a winner.

The last few weeks have been a whirlwind of fear, appointments, test, e-mails, and phone calls. So yesterday when I finally did my 'it's all over sigh' my body began screaming out. Every inch of my neck and back reminded me of the tension I have been holding on to for two weeks now. My head began throbbing, and suddenly I found myself super annoyed with Abigail.
But after a good night of sleep last night (for everyone) today seems brighter. There is still a lot going on. I still can get stressed quickly if I let myself dwell on any one fact too long. But over all, I feel like we just might make it through the next few weeks and still be okay.
So almost two weeks ago Abigail had an MRI on a Monday, had to buy four new tires after one blew, got results that she did not have a tumor in her neck, ended up in the e.r. when her tumor grew overnight, found it it both grew some and was infected, did a sleep study on Tuesday night, found out we will owe more for her surgery than we were originally told by the hospital, heard creatures in our attic (this is not the first time we have had issues), found out Abigail has mild obstructive sleep apnea, and had to pay to have our washing machine fixed. *Sigh* What a long two weeks it has been.
So now we just need to continue to push hard to have more raised before we go to Chicago. We have enough to pay the surgeon up front, and found out we have to have some of the hospital up front (we don't know how much yet). However the surgeon is 7,000. So we definitely need more than we have right now when we show up in a little over two weeks. Thanks to all of you who are adding our widget to your page, posting things on facebook, and sharing Abigail's story. You are all the reason we have gotten so much given to us for her surgery already.
And last, but not least, the winner of the awesome rice bag as drawn by is...commenter #2 Stephanie. :) I need your address to send your prize. Thanks everyone who entered. I like giving stuff away. Maybe someday soon I'll make something fun and summery to give away as well!!!

Enjoying a warm and relaxing weekend,

1 comment:

  1. Hi,

    I am 22 years old and I have NF1. Although I don't have any external tumors, I do have a lot of fibromas. When I was younger, I had a few fibromas removed & everything went absolutely great. I barely even remember it! NF can definitely be tough though & I wish you and Abigail the best :)