Friday, April 9, 2010

Getting the word out about NF

I started this blog last summer for a few reasons. One was just to keep friends and family informed without making 20 phone calls to relay things over and over. Another was because this is what I wanted when I found out Abigail had NF. I wanted to read someones personal account of not just what could happen, but how they were dealing with things emotionally. Although I don't write only about NF, I have tried hard to be honest...sometimes to the point I think other people aren't sure if I'm okay or not. I am fine.
Today we took another big step in getting the word out about NF. We did an interview with our local newspaper. There will be a story about our little bug and the unknowns that lie ahead of us. I pray that the words are transformed into being what I was actually trying to say, instead of what I did say. When they publish the story I will do my best to figure out how to link to it on here. I think I may have figured it out...but I'm not sure.
I'll leave you with some pictures of the beautiful little girl who came quietly tiptoeing into our lives, and stole our hearts with her big brown eyes, heart shaped nose, and smile that lights up the world.

Abigail hunting eggs with her playgroup. This is one of the only eggs she actually picked up. Even after I showed her they had cool stuff inside, she was more interested in chewing on a stick. That's my girl!

Abigail partaking of her first banana split.

I was trying to get a picture of how beautiful Abigail is with her big brown eyes and her hair in an afro! I don't know if this picture even comes close to real life. She takes my breath away sometimes!

Mama of a sweet little girl,

1 comment:

  1. I love those pictures! We started Mikan's blog for the same reasons you started yours, to communicate with family and friends. But now it has grown into a portal to an amazing network of people going through similar situations. We've learned so much throughout our lives with Mikan. Congratulations on the newspaper interview! You guys are doing a great job. We do live near South Bend and go to Riley periodically, although lately most of Mikan's care has been handled in South Bend (within the last 7 months). Do you guys go to Riley?