Wednesday, March 3, 2010

I feel good

One of the millions of reasons we should try to find a cure for Neurofibromatosis.

This isn't meant to be boastful. I am doing much less than others. However, ever since this NF thing has come into our lives I have wanted to do something, anything to be proactive. I have spent time talking to other parents, other patients of NF, researching NF, and the list goes on. I have tried to think of what I could do to make this "better."
In the grand scheme of things there is nothing I can do. However there are a couple of organizations that do research to find treatments and hopefully some day a cure for NF. I have gone back and forth with wanting to do a fundraiser of some sort. I have decided to go for it. If I raise one hundred dollars and it helps to fund a very small amount of research, it will be worth it. I need to do something so that I feel hopeful about the future for my daughter.
So today I took my first step. I live in the same town that Garfield was started in. Jim Davis has a studio here. So in learning that has what's called National Doodle Day I decided I would do something. I called and asked if they could send a drawing. The drawings are auctioned on e-bay in May (national NF awareness month) and the money is used to fund research. Okay this was a small step since all I had to do was make a phone call and send a few e-mails. However it feels good. I want to help.
I don't know tons of famous people who can send drawings, but I have other things I can do. I am hoping to do some much bigger fundraisers here locally. I am hoping to make this disorder known in my town, county, and even state.
So for anyone reading this who knows someone famous or is interested in bidding on a drawing of a famous person you can check out .
Also if you are interested in donating money to one of the organizations anonymously or in honor of Abigail you can go to or

Thanks for once again reading my rambling thoughts for the moment,

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