So here's the not too brief, not too long run down of life the last few days. Wednesday night we hung out in the e.r. until about one in the morning. We were admitted for dehydration, low temperature, lethargy, and decrease food intake.
Thursday afternoon was spent with an entourage of doctors making their way through our room. We had found out that morning that Shilo's issues was hypothyroidism. Super common in Ds. However, Shilo's tsh numbers turned a few heads. There's a little bit of variance in 'normal' but most labs accept anywhere between .35-5.2 for normal range.
Some of the 'really high' numbers they normally see are around 400. Shilo's tsh was 944. It literally set a record. Apparently little one was on the brink of multi-organ shutdown. We are very glad that we made our way to the e.r. at Riley, and for fast acting doctors and nurses who seemed to understand the seriousness of things much better than I did (even if they didn't yet know about the crazy numbers).
We are off of oxygen, and i.v. fluids as of now, and she has taken three bottles and done really well. She is still have some desating episodes, but I imagine that if we were at home we wouldn't even realize it was happening since her color is staying pretty good. So when the machines start beeping, I don't freak too much ( I think this makes the nurses as uncomfortable as the parents who over react to everything).
So if things go well tonight, we should be able to go home tomorrow! So keep praying for little miss to eat well, keep her o2 sats up, and have a great night!!!!