Well the appointment with the orthopedist is over. I waited a few days to write because if I had written immediately the post might have been full of profanity.
I'll just give you the highlight of it so as to not bore you. The resident came in first and asked me what was going on so on and so forth. He asked me to describe an episode of back pain. I said something along the lines of she cries, contorts in pain, her legs stiffen and convulse and she holds her back and says hurt. His response "Is it possible she has heard you or your husband complain of back pain and is just copying that for attention." Yes, but that doesn't explain the uncontrollable crying, the contorting and grimacing, and the tremors in her legs. Thanks future doctor. Could you send in the real guy now.
Yeah, that didn't make it any better. The other doctor proceeded to tell me that the majority of cases of NF are new mutations (actually 50% are, and 50% are inherited..so no majority there), that all of her issues with muscle tone, in toeing, inability to run, leading with one side of her body, are all common two year old things, and the best one was that the afo's and de-rotations straps are a waste. I was ready to grab my baby and flee from the room at this point. So to drive it all home before he walked out he said he didn't need a follow up exam and that he would see us in a few years when the NF started causing back problems (it can cause scoliosis but is not guaranteed).
I walked out pissed and doubting my judgement as to why we were doing all of the things we were. However I quickly realized that two other doctors and her p.t. (who have all seen her more than once for ten minutes) seem to think she has something going on and that she needs the devices. So we will stick with their opinion. Oh, and he won't be seeing us again. Ever. If she needs to see another orthopedist it will not be him!!
Now that I'm done talking about that I'll tell you about our smart cookie. I'll start with the fact that Abigail is at pretty high risk for learning disabilities. This thought stays in my head so that I can pay attention and get her help early if I notice anything. But God has reminded me over and over that I need to let go of it because right now, she's fine.
My daughter who turned two less than a month ago can correctly identify colors most of the time. She can correctly name most of her shapes. She identifies the uppercase letters A and B. She identifies the numbers 5 and 8. She knows the street signs for stop, railroad crossing, and do not enter. When she sees her name written she says "A" "B" "I." She knows tons of other stuff, but I am often astounded at how quickly she picks up on things. We haven't really set out to do anything major in teaching her. We have a shape or color we are focusing on each week right now, but all we are doing is making a craft with them, finding them when we are out and about, and playing with that color of play-doh. But she inquires a lot. And when she does I tell her what the color is, or shape, or letter, so on and so on. And a lot of it seems to stick in her brain. She is definitely intelligent.
I'll leave you with two of her prayers yesterday. They make us laugh (notice her theme of food).
"Jes. Mama. Grandma. Popcorn. Papa. Amen."
Interpretation: Jesus, thank you, i like, or help, mama, papa and grandma. And either thank you for, or I like popcorn.
At bedtime she first went upstairs and shared with lambie something about Jesus. When we prayed together she wanted to pray and this is how it went.
"Jes. Mama. Papa. Grandma. Grandpa. Cupcakes. Mama, Papa, cheach. Sar, Gick, brown. Amen."
Interpretation: Pretty much the same as above aside from the telling Jesus that Mama and Papa are peach, and that Sarah and Vicky are brown. Oh the faith of one so small.
Calmed down and ready for a better appointment next week,