Friday, December 15, 2017

Magic mundane.

Today we made cookies.  Just tiny and I.  He's been full of medical adventures of late.  He's currently without a cast for scoliosis due to pain he was having.  We have testing coming up in January to find out if the pain is caused by his spinal cord retethering.  We are waiting for insurance to approve (or deny) a very broad genetic test for him so we can give a name to whatever the things are that have caused his differences. He is getting afo's. And, a Boston TLSO for his scoliosis.  He starts growth hormone tomorrow via daily home injections. He's lost strength in his legs.  He's getting ready to turn three, and with each new year with him, I feel as if we are given more puzzle pieces.  More diagnoses.  And, less answers.
But cookies make the world feel normal.  Good.  Chocolatey.  So we baked.  And, we ate.  And, in the midst of feeling weighed down by the heavy things, normalcy is beautiful.  Mundane becomes magic.  And, oatmeal chocolate chip cookies become medicine.


*If you're interested in following our growth hormone story, feel free to find it on Instagram under #ashergrows *
 
 
 
 
Flour everywhere.

Trying brown sugar.

Adding chocolate chips.

Eating the ones that were spilled.



Ready to bake.

Eating chocolate chips while we wait.

Still warm.


Mmmmmmm....cookies.

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