tag:blogger.com,1999:blog-5663822113275334627.post8857514175989826479..comments2023-06-18T09:02:57.697-04:00Comments on life at mannchester estate: Peacethe family of mannchester estatehttp://www.blogger.com/profile/01989615450493104842noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-5663822113275334627.post-39876820116248358502010-04-24T00:35:45.672-04:002010-04-24T00:35:45.672-04:00I got your link from the inspire website. I am Ta...I got your link from the inspire website. I am Tara (birdiebabee). We have alot in common! I am a child of god AND adopting 5 children with NF1! I was curious about the plexiform being a 'big deal'. Our son has 3/4 of his leg covered in a dark brown spot (not hairy) and one doctor said "oh that could be a plexiform neurofibroma but the only way to find out is from an MRI...but still it wouldn't change anything" and left it at that. Do you, by chance, have a picture of your daughter's spot? OR I can try to get a pic of my son's leg and show you. I am highly concerned about this now. I'm sorry you are going through this....but you are not alone :-) Prayers for you allAnonymousnoreply@blogger.com